Tag Archives: The North Side of Down

Amanda Portrait, Day 24 – Like a Prayer, 2

Mixed media. Amanda has Down syndrome and is currently being held by her guardian, a sibling who is not allowing us to have contact. On March 27 it has been 8 months since I have spoken with my sister. I … Continue reading

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Amanda Portrait – Day 21, Watercolor and Kindergarten Story

This is how Amanda looked when my parents tried to mainstream her in the public school system. She started kindergarten with the other local kids…. Until she had an unfortunate run-in with her teacher. The following is an excerpt from … Continue reading

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Amanda Portrait – Day 18 – Profile, 2 – And Dad

On this day in 2013, my dear Dad breathed his last — and left a wake of pure chaos. Apparently, he was the one policing factor that kept family members behaving at least somewhat like human beings. Unfortunately, his kids … Continue reading

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Amanda Portrait, Day 17 – Profile

This was one of my favorite early photos of Amanda. I was trying to be like a real photographer and she would oblige me by posing. I told her to go to the window and look out, and this was … Continue reading

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Amanda Portrait Day 16 – Down Syndrome in Black and White

Once in awhile Amanda and I like to hang out at the DeTour Harbor. We walk out on the dock and watch the freighters go by. Mostly, Amanda likes to pose for pictures. I have a lot of memories of … Continue reading

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Amanda Portrait Day 14 – Down On the Shore

Who doesn’t love a beach, right? But the Scenic has pretty much ruined all other beaches for us, with its clean sand and lighthouse view. It’s where Dad used to take us swimming when we were small, and Amanda learned … Continue reading

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Amanda Portrait Day 11 – Watercolor Baby – “I’m the Guardian and You’re Not”

Among Amanda’s first words were, “Who’s that?” This was abbreviated into one word. “Whozat?” When she was about two years old, this was her way of asking to meet someone. She would point at them and say, “Whozat?” The variation … Continue reading

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Amanda Portrait Day 10 – Watercolor

Amanda would appreciate this image, as it is probably her favorite stage that her hair was in — long and flowing. This is the longest her hair ever got. She was about seven years old here. We always thought it … Continue reading

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Amanda Portrait – Day 9 – Happy Down Syndrome Day!

In honor of Down Syndrome Day, this shows Amanda as she truly is: A goof ball! Like her dad before her, she has a self-effacing sense of humor. She is a person very confident in who she is. I wanted … Continue reading

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Amanda Portrait – Day 8

I call this, “The Two Golden Orbs.” The picture is from the weeks in 2013 following Dad’s death, when Amanda and I stayed in the motel room that Amanda called, “Our apartment.” Este slept on Amanda’s bed every night and … Continue reading

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