Tag Archives: guardianship

No I Won’t Back Down: The Medicaid Syndrome

Posted on June 23, 2017 by

For folks with disabilities, it’s a harrowing time as the GOP holds the ol’ medical insurance globe in their hands and gives it a casual spin. Gotta get this bill passed. It is more important to prove a point — … Continue reading →

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Down Syndrome, Guardianship and the Justice System

Posted on May 4, 2017 by

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading →

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When Your Guardian Acts Like a Creepy Stalker Dude

Posted on May 3, 2017 by

Amanda: Hellooooooo Me: Holy moly where have you been?! Do you know how long it has been since I talked with you? Amanda: I know! Me: I mean like I was wondering if they threw you in a ditch or … Continue reading →

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A Letter From Amanda – After 9 Months

Posted on April 21, 2017 by

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading →

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Happy Siblings Day Amanda – Portrait Day 28 – Star Wars!

Posted on April 10, 2017 by

Meeting Harrison Ford is on Amanda’s bucket list. Beyond that, she is a tad obsessed with Star Wars. She can watch it ad nauseum. So, my gift to her this Sibling’s Day is a place in Hollywood History! Amanda has … Continue reading →

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Amanda Portrait Day 27 – Watercolor – Modeling on the Boat

Posted on April 9, 2017 by

Amanda and I like to go shopping. A lot. Well, I like it better than she does. I have spent literally years dressing her, going back to the days when she was in school and had cool new clothes every … Continue reading →

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Amanda Portrait Day 26 – Angel Bears

Posted on April 8, 2017 by

After Dad died, my friend Cindy gave Amanda and me a set of angel Beanie Baby bears. We named the bears Blaine and Elaine after our parents, and took them to Girl’s Day Out with us. I think Amanda looks … Continue reading →

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Amanda Portrait Day 25 – Don’t You Forget About Me

Posted on April 7, 2017 by

This is Day 25 of posting Amanda’s portrait. I keep posting these images of her because I am so afraid she will be forgotten like others who cannot speak for themselves. I don’t want her to disappear. Today I received … Continue reading →

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Amanda Portrait, Day 24 – Like a Prayer, 2

Posted on April 7, 2017 by

Mixed media. Amanda has Down syndrome and is currently being held by her guardian, a sibling who is not allowing us to have contact. On March 27 it has been 8 months since I have spoken with my sister. I … Continue reading →

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Amanda Portrait Day 22 – Lunch with the Cast of “Friends”

Posted on April 3, 2017 by

On her Bucket List, Amanda included, “Lunch with the cast of ‘Friends.’” She added, “They are probably all vegetarians. Except Courteney Cox. She probably eats meat.” So today’s portrait of Amanda includes the whole ‘Friends’ cast. I’m sure Amanda is … Continue reading →

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