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Today is the 4 month anniversary of my brother Jon’s death. He was bigger than life, a blustering mountain man, a person who filled up a room. He died in a hospital in Seattle and what followed was a host … Continue reading
My latest installment of, “When the Witless Go To Washington” — or maybe, “You Can’t Outwit the Wittiest”? Or, “No One is Dumber Than Dan”? This actually happened. As I explained in previous posts, our brother Jon died in August … Continue reading
This is my illustration of an event that happened at my brother Jon’s memorial service on August 10. My sister Amanda has Down syndrome and we are both brokenhearted over his death. We loved Jon. I wanted to take her … Continue reading
Lately, I have seriously considered permanently changing my name. Because I am an artist and writer, I have always just kept my own name to avoid confusion, even maintaining it through an eleven-year marriage, now defunct. There is the matter … Continue reading
Once a guardian figures out he is an oligarch and answers to no one, including the law, there are no limits to his behavior. This is a rundown on how the situation escalated with my sister, Amanda, who has Down … Continue reading
Who will be your guardian? Who will take control when you are deemed unfit to make decisions? For my sister Amanda, who has Down syndrome, this has already been decided. She is not allowed to mourn for her brother in … Continue reading
If this seems like something that doesn’t concern you, as my sister Amanda would say, “Think again.” Amanda has Down syndrome. How does this relate to you? Let me explain it. At some point, God willing, you will grow old. … Continue reading
It’s ironic that I have to follow up my last post, “When the Curtain Grows Thin”, which was about messages we receive from loved ones who have left their earthly shell and gone to what Jon would call the Happy … Continue reading
On July 4th, Mr. Thomas Gibbons was walking on the road down by the campground where he was staying with family members, just north of the old H&H store. It was around 2 am and there were likely fireworks popping … Continue reading
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A blog full of stories, photos and drawings about all Wild life and nature living or surrounding Portuguesa's farmstead. / Um blog cheio de historias, fotografias e desenhos mostrando a vida selvagem e a natureza que vive e rodeia a Quinta da Portuguesa.
two of us are tall and the other one of us is short and has Down syndrome
Authors Nancy and Amanda Bailey describe in their true story what life is like growing up with Down syndrome. Hilarious, heartbreaking and inspirational.
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