Tag Archives: dysfunction

Amanda Portrait Day 19 – Watercolor

This is how the days trickle past. In two more days it will be three weeks since I have started painting Amanda. It is easy to neglect those who love you. Don’t let your life slip by without sharing bits … Continue reading

Posted in amanda, empathy | Tagged , , , , , , | Leave a comment

Amanda Portrait, Day 15 – Down Syndrome and Bungee Jumping

When Amanda told me she wanted to put bungee jumping on her bucket list, I was all, “Yeah, okay. You have fun with that.” She added this to other things I would not partake in, like skydiving and riding in … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , , | Leave a comment

Amanda Portrait Day 13 – Birthday Pizza

When Amanda turned 41 in September 2011, we had a big party for her at the local hair salon. Entertainment was provided in the form of an accordion player. (!) Guests included the proprietor Betty, her now-husband Jim, Mom and Dad … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , , , | Leave a comment

Amanda Portrait Day 11 – Watercolor Baby – “I’m the Guardian and You’re Not”

Among Amanda’s first words were, “Who’s that?” This was abbreviated into one word. “Whozat?” When she was about two years old, this was her way of asking to meet someone. She would point at them and say, “Whozat?” The variation … Continue reading

Posted in empathy | Tagged , , , , , , , , | Leave a comment

Amanda Portrait Day 10 – Watercolor

Amanda would appreciate this image, as it is probably her favorite stage that her hair was in — long and flowing. This is the longest her hair ever got. She was about seven years old here. We always thought it … Continue reading

Posted in amanda, empathy, The North Side of Down, watercolor | Tagged , , , , , , , , , , | Leave a comment

Amanda Portrait – Day 7

Today’s portrait is kind of cheating because I drew this back in 1978 or 79. It is a pencil sketch of Amanda, done from life, when she was brushing her hair. She is pictured with our sister. This drawing came … Continue reading

Posted in abuse, empathy | Tagged , , , , , , | Leave a comment

Amanda Portrait – Day 6

I call this one “Raggedy Mandy.” It is oil pencil on charcoal paper, about 9×12″. She didn’t play with dolls a whole lot, but once in awhile I could catch her with one. I have been granted a hearing. May … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , , | Leave a comment

Amanda Portrait – Day 5

It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading

Posted in abuse, amanda, down syndrome, empathy, guardianship | Tagged , , , , , , , | 1 Comment

Amanda, Mom is Watching!

So a couple of days ago I enlisted the help of a professional negotiator. Today, she finally reached the guardian’s lawyer. The negotiator called me back and explained that the guardian WANTS me to “have a relationship with Amanda”, but … Continue reading

Posted in abuse, amanda, empathy | Tagged , , , , , , , , | Leave a comment

Amanda Portrait, Day 3

Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading

Posted in abuse, amanda, art, Dad, disabilities, disability, dispute, down syndrome, down's, down's syndrome, dysfunctional, empathy, families, family, guardianship | Tagged , , , , , , , , | Leave a comment