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This is how the days trickle past. In two more days it will be three weeks since I have started painting Amanda. It is easy to neglect those who love you. Don’t let your life slip by without sharing bits … Continue reading
When Amanda told me she wanted to put bungee jumping on her bucket list, I was all, “Yeah, okay. You have fun with that.” She added this to other things I would not partake in, like skydiving and riding in … Continue reading
When Amanda turned 41 in September 2011, we had a big party for her at the local hair salon. Entertainment was provided in the form of an accordion player. (!) Guests included the proprietor Betty, her now-husband Jim, Mom and Dad … Continue reading
Among Amanda’s first words were, “Who’s that?” This was abbreviated into one word. “Whozat?” When she was about two years old, this was her way of asking to meet someone. She would point at them and say, “Whozat?” The variation … Continue reading
Amanda would appreciate this image, as it is probably her favorite stage that her hair was in — long and flowing. This is the longest her hair ever got. She was about seven years old here. We always thought it … Continue reading
Today’s portrait is kind of cheating because I drew this back in 1978 or 79. It is a pencil sketch of Amanda, done from life, when she was brushing her hair. She is pictured with our sister. This drawing came … Continue reading
I call this one “Raggedy Mandy.” It is oil pencil on charcoal paper, about 9×12″. She didn’t play with dolls a whole lot, but once in awhile I could catch her with one. I have been granted a hearing. May … Continue reading
It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading
So a couple of days ago I enlisted the help of a professional negotiator. Today, she finally reached the guardian’s lawyer. The negotiator called me back and explained that the guardian WANTS me to “have a relationship with Amanda”, but … Continue reading
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A blog full of stories, photos and drawings about all Wild life and nature living or surrounding Portuguesa's farmstead. / Um blog cheio de historias, fotografias e desenhos mostrando a vida selvagem e a natureza que vive e rodeia a Quinta da Portuguesa.
two of us are tall and the other one of us is short and has Down syndrome
Authors Nancy and Amanda Bailey describe in their true story what life is like growing up with Down syndrome. Hilarious, heartbreaking and inspirational.
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