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Tag Archives: down’s syndrome
In Other News, Peter Falk’s Daughter is Still Chipping Away at Guardianship
I thank my lucky stars for Catherine Falk, every day of my life. Daughter of TV’s famous, rumpled, delightful Lt. Columbo, she has been working hard to assure nobody else has to go through what she did. When her father … Continue reading
Posted in empathy
Tagged abuse, Amanda, Books, Down syndrome, down's syndrome, guardian, guardianship, The North Side of Down
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Down Syndrome – And The Chokehold of Guardianship
In what amounts to the most heartbreaking scene I have ever witnessed, Amanda tearfully complied. This 48 year old woman with Down syndrome had to endure the public humiliation of being treated like a child. But she did it with dignity. She got up, walked out of the restaurant with Ted and his wife, and meanwhile, I restrained myself from punching anyone in the throat. Continue reading
But She’s Got Down Syndrome, Right?
I just got off the phone with a lawyer in Arizona. We talked at length about Amanda’s case. I explained that Amanda has Down syndrome and she wants to move back to Michigan and live with me. I told him … Continue reading
The Audacity of My Sister, Amanda
My youngest sister Amanda has Down syndrome and, if you have been following her story you already know she is enmeshed in a guardianship situation that is rife with controversy. Amanda is 48 years old and I am currently crowdfunding … Continue reading
Posted in abuse, down syndrome, down's syndrome, family, guardianship
Tagged Amanda, Down syndrome, down's syndrome, guardian, guardianship, narcissism, narcissists, The North Side of Down
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Amanda Portrait – Day 6
I call this one “Raggedy Mandy.” It is oil pencil on charcoal paper, about 9×12″. She didn’t play with dolls a whole lot, but once in awhile I could catch her with one. I have been granted a hearing. May … Continue reading
Posted in amanda, empathy
Tagged Amanda, art, Books, Down syndrome, down's syndrome, dysfunction, family, guardianship, The North Side of Down
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Amanda, Mom is Watching!
So a couple of days ago I enlisted the help of a professional negotiator. Today, she finally reached the guardian’s lawyer. The negotiator called me back and explained that the guardian WANTS me to “have a relationship with Amanda”, but … Continue reading
Posted in abuse, amanda, empathy
Tagged abuse, Amanda, art, Down syndrome, down's syndrome, dysfunction, family, guardianship, mom
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Amanda Portrait – Day 4
When Amanda was a little girl, she spent long hours sitting with me in my room, watching and keeping me company while I wrote stories at my desk. She didn’t learn to read and write until she was 21 or … Continue reading
Posted in abuse, amanda, empathy, guardianship
Tagged abuse, Amanda, art, Down syndrome, down's syndrome, family, guardianship, The North Side of Down
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Amanda Portrait, Day 3
Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading
Posted in abuse, amanda, art, Dad, disabilities, disability, dispute, down syndrome, down's, down's syndrome, dysfunctional, empathy, families, family, guardianship
Tagged abuse, Amanda, art, Down syndrome, down's syndrome, dysfunction, family, guardianship, oil pencil
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Amanda Portrait, Day 2
A serious moment with her swing. She was seven years old here and she was serious about that swing! http://www.stopguardianabuse.org The snowstorm is reminding me of snow days when we were young.
Posted in empathy
Tagged abuse, Amanda, Books, Down syndrome, down's syndrome, dysfunction, family, guardianship, The North Side of Down
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Nevertheless, She Persisted
I received a Valentine’s Day card today from my sister Amanda. Amanda has Down syndrome. She is 46 years old and, following the death of our Dad in 2013, she went to live with our older brother in Arizona. … Continue reading
Posted in abuse, amanda, disability, down syndrome, empathy
Tagged Amanda, civil rights, Disability, Down syndrome, down's syndrome, dysfunction, family, guardianship, narcissists
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