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When Amanda told me she wanted to put bungee jumping on her bucket list, I was all, “Yeah, okay. You have fun with that.” She added this to other things I would not partake in, like skydiving and riding in … Continue reading
Those of us fortunate enough to know Amanda as she really is, without the Down Syndrome label, without talking over her or putting her in another room to watch cartoons with the kids (an ex-boyfriend’s sister actually did that once), … Continue reading
Amanda would appreciate this image, as it is probably her favorite stage that her hair was in — long and flowing. This is the longest her hair ever got. She was about seven years old here. We always thought it … Continue reading
I received a Valentine’s Day card today from my sister Amanda. Amanda has Down syndrome. She is 46 years old and, following the death of our Dad in 2013, she went to live with our older brother in Arizona. … Continue reading
As Inauguration Day circles above us, riding the air currents like a predator, many have been dreading the last hours of our dear President Obama’s administration. His eloquence, grace and humor will certainly leave a tremendous void. But this inauguration … Continue reading
Dr. Phil called. Okay, it was actually Dr. Phil’s employee. On December 7th, I received an email from Kristi Hall, a producer for Dr. Phil. She was trying to call me to potentially arrange for Amanda and me to appear … Continue reading
This blog post is worth a revisit: From January 21, 2015 Prior Lake Priorities – On Bullying I know everyone likes to see nice and sunny, funny stories about my sister Amanda, who despite (or maybe partially due to) having … Continue reading
It’s Independence Day, so I guess it is the ideal time to point out that all Americans are not free. The film Free State of Jones is a triumphant and tragic commentary on how far independence has come. Matthew … Continue reading
Amanda has long been a writer at heart. Beginning from when she was about two, she used to climb the stairs and sit with me in my bedroom while I wrote page after page on spiral-bound note paper. I wrote … Continue reading
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A blog full of stories, photos and drawings about all Wild life and nature living or surrounding Portuguesa's farmstead. / Um blog cheio de historias, fotografias e desenhos mostrando a vida selvagem e a natureza que vive e rodeia a Quinta da Portuguesa.
two of us are tall and the other one of us is short and has Down syndrome
Authors Nancy and Amanda Bailey describe in their true story what life is like growing up with Down syndrome. Hilarious, heartbreaking and inspirational.
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