Tag Archives: art

Amanda Portrait Day 16 – Down Syndrome in Black and White

Once in awhile Amanda and I like to hang out at the DeTour Harbor. We walk out on the dock and watch the freighters go by. Mostly, Amanda likes to pose for pictures. I have a lot of memories of … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , | Leave a comment

Amanda Portrait, Day 15 – Down Syndrome and Bungee Jumping

When Amanda told me she wanted to put bungee jumping on her bucket list, I was all, “Yeah, okay. You have fun with that.” She added this to other things I would not partake in, like skydiving and riding in … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , , | Leave a comment

Amanda Portrait Day 13 – Birthday Pizza

When Amanda turned 41 in September 2011, we had a big party for her at the local hair salon. Entertainment was provided in the form of an accordion¬†player. (!) Guests included the proprietor Betty, her now-husband Jim, Mom and Dad … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , , , | Leave a comment

Amanda Portrait Day 12 – Little Beluga

Those of us fortunate enough to know Amanda as she really is, without the Down Syndrome label, without talking over her or putting her in another room to watch cartoons with the kids (an ex-boyfriend’s sister actually did that once), … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , , , , | Leave a comment

Amanda Portrait Day 11 – Watercolor Baby – “I’m the Guardian and You’re Not”

Among Amanda’s first words were, “Who’s that?” This was abbreviated into one word. “Whozat?” When she was about two years old, this was her way of asking to meet someone. She would point at them and say, “Whozat?” The variation … Continue reading

Posted in empathy | Tagged , , , , , , , , | Leave a comment

Amanda Portrait Day 10 – Watercolor

Amanda would appreciate this image, as it is probably her favorite stage that her hair was in — long and flowing. This is the longest her hair ever got. She was about seven years old here. We always thought it … Continue reading

Posted in amanda, empathy, The North Side of Down, watercolor | Tagged , , , , , , , , , , | Leave a comment

Amanda Portrait – Day 9 – Happy Down Syndrome Day!

In honor of Down Syndrome Day, this shows Amanda as she truly is: A goof ball! Like her dad before her, she has a self-effacing sense of humor. She is a person very confident in who she is. I wanted … Continue reading

Posted in amanda, down syndrome, empathy | Tagged , , , , , , | Leave a comment

Amanda Portrait – Day 8

I call this, “The Two Golden Orbs.” The picture is from the weeks in 2013 following Dad’s death, when Amanda and I stayed in the motel room that Amanda called, “Our apartment.” Este slept on Amanda’s bed every night and … Continue reading

Posted in abuse, amanda, empathy | Tagged , , , , , , , , , | 2 Comments

2017: A Phone Odyssey

It finally happened. My reliable, well-loved Blackberry went kaput. This was my third, or fourth or fifth Blackberry. We are talking at least a decade of Blackberry-type phones. ¬†I was addicted to the tactile keys and never wanted to resort … Continue reading

Posted in art, empathy | Tagged , , , , , , , | Leave a comment

Amanda Portrait – Day 6

I call this one “Raggedy Mandy.” It is oil pencil on charcoal paper, about 9×12″. She didn’t play with dolls a whole lot, but once in awhile I could catch her with one. I have been granted a hearing. May … Continue reading

Posted in amanda, empathy | Tagged , , , , , , , , | Leave a comment