Tag Archives: Amanda

It Ain’t Dyin’ I’m Talking About, It’s Livin’

It’s ironic that I have to follow up my last post, “When the Curtain Grows Thin”, which was about messages we receive from loved ones who have left their earthly shell and gone to what Jon would call the Happy … Continue reading

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Book Sale! The North Side of Down – Excerpt

The true story of two sisters, one with Down syndrome, the misfits in a large, dysfunctional family. When their father dies, the two sisters find their lives quickly unraveling. The North Side of Down is winner of the 2015 Medallion … Continue reading

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Down Syndrome, Guardianship and the Justice System

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading

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When Your Guardian Acts Like a Creepy Stalker Dude

Amanda: Hellooooooo Me: Holy moly where have you been?! Do you know how long it has been since I talked with you? Amanda: I know! Me: I mean like I was wondering if they threw you in a ditch or … Continue reading

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A Letter From Amanda – After 9 Months

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading

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Happy Siblings Day Amanda – Portrait Day 28 – Star Wars!

Meeting Harrison Ford is on Amanda’s bucket list. Beyond that, she is a tad obsessed with Star Wars. She can watch it ad nauseum. So, my gift to her this Sibling’s Day is a place in Hollywood History! Amanda has … Continue reading

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Amanda Portrait Day 27 – Watercolor – Modeling on the Boat

Amanda and I like to go shopping. A lot. Well, I like it better than she does. I have spent literally years dressing her, going back to the days when she was in school and had cool new clothes every … Continue reading

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Amanda Portrait Day 26 – Angel Bears

After Dad died, my friend Cindy gave Amanda and me a set of angel Beanie Baby bears. We named the bears Blaine and Elaine after our parents, and took them to Girl’s Day Out with us. I think Amanda looks … Continue reading

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Amanda Portrait Day 25 – Don’t You Forget About Me

This is Day 25 of posting Amanda’s portrait. I keep posting these images of her because I am so afraid she will be forgotten like others who cannot speak for themselves. I don’t want her to disappear. Today I received … Continue reading

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Amanda Portrait, Day 24 – Like a Prayer, 2

Mixed media. Amanda has Down syndrome and is currently being held by her guardian, a sibling who is not allowing us to have contact. On March 27 it has been 8 months since I have spoken with my sister. I … Continue reading

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