Tag Archives: Amanda

Book Sale! The North Side of Down – Excerpt

The true story of two sisters, one with Down syndrome, the misfits in a large, dysfunctional family. When their father dies, the two sisters find their lives quickly unraveling. The North Side of Down is winner of the 2015 Medallion … Continue reading

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Down Syndrome, Guardianship and the Justice System

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading

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When Your Guardian Acts Like a Creepy Stalker Dude

Amanda: Hellooooooo Me: Holy moly where have you been?! Do you know how long it has been since I talked with you? Amanda: I know! Me: I mean like I was wondering if they threw you in a ditch or … Continue reading

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A Letter From Amanda – After 9 Months

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading

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Happy Siblings Day Amanda – Portrait Day 28 – Star Wars!

Meeting Harrison Ford is on Amanda’s bucket list. Beyond that, she is a tad obsessed with Star Wars. She can watch it ad nauseum. So, my gift to her this Sibling’s Day is a place in Hollywood History! Amanda has … Continue reading

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Amanda Portrait Day 27 – Watercolor – Modeling on the Boat

Amanda and I like to go shopping. A lot. Well, I like it better than she does. I have spent literally years dressing her, going back to the days when she was in school and had cool new clothes every … Continue reading

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Amanda Portrait Day 26 – Angel Bears

After Dad died, my friend Cindy gave Amanda and me a set of angel Beanie Baby bears. We named the bears Blaine and Elaine after our parents, and took them to Girl’s Day Out with us. I think Amanda looks … Continue reading

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Amanda Portrait Day 25 – Don’t You Forget About Me

This is Day 25 of posting Amanda’s portrait. I keep posting these images of her because I am so afraid she will be forgotten like others who cannot speak for themselves. I don’t want her to disappear. Today I received … Continue reading

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Amanda Portrait, Day 24 – Like a Prayer, 2

Mixed media. Amanda has Down syndrome and is currently being held by her guardian, a sibling who is not allowing us to have contact. On March 27 it has been 8 months since I have spoken with my sister. I … Continue reading

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Amanda Portrait Day 23 – Like a Prayer

This ethereal photo of Amanda was taken on her birthday. We had a Girl’s Day Out and she was served a free cake, complete with candle, at the restaurant. I told her to, “Make a wish!” and she immediately put … Continue reading

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