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My latest installment of, “When the Witless Go To Washington” — or maybe, “You Can’t Outwit the Wittiest”? Or, “No One is Dumber Than Dan”? This actually happened. As I explained in previous posts, our brother Jon died in August … Continue reading
Once a guardian figures out he is an oligarch and answers to no one, including the law, there are no limits to his behavior. This is a rundown on how the situation escalated with my sister, Amanda, who has Down … Continue reading
Who will be your guardian? Who will take control when you are deemed unfit to make decisions? For my sister Amanda, who has Down syndrome, this has already been decided. She is not allowed to mourn for her brother in … Continue reading
Falling into the category of, “Making a Hard Loss Harder Than It Has To Be”: #griefsucks #familysucksmore #guardianshipsucks #downsyndromedoesnotequalstupid Mean Sees Amanda just lost her favorite brother, Jon. (Yep, sorry Ted, he is way ahead of you. I am sure … Continue reading
Aretha’s death is puncturing the airwaves just as her voice did. The RESPECT song is a hallmark of the #Metoo movement, and we need it now more than ever. It is the handle of a hammer for women. We will … Continue reading
For folks with disabilities, it’s a harrowing time as the GOP holds the ol’ medical insurance globe in their hands and gives it a casual spin. Gotta get this bill passed. It is more important to prove a point — … Continue reading
Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading
Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading
Meeting Harrison Ford is on Amanda’s bucket list. Beyond that, she is a tad obsessed with Star Wars. She can watch it ad nauseum. So, my gift to her this Sibling’s Day is a place in Hollywood History! Amanda has … Continue reading
wildlife rehabilitation and education
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A blog full of stories, photos and drawings about all Wild life and nature living or surrounding Portuguesa's farmstead. / Um blog cheio de historias, fotografias e desenhos mostrando a vida selvagem e a natureza que vive e rodeia a Quinta da Portuguesa.
two of us are tall and the other one of us is short and has Down syndrome
Authors Nancy and Amanda Bailey describe in their true story what life is like growing up with Down syndrome. Hilarious, heartbreaking and inspirational.
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