Tag Archives: abuse

Blood Sisters Part 3 — Is Amanda’s Guardian Mean, Crazy or Just Stupid?

Falling into the category of, “Making a Hard Loss Harder Than It Has To Be”: #griefsucks #familysucksmore #guardianshipsucks #downsyndromedoesnotequalstupid Mean Sees Amanda just lost her favorite brother, Jon. (Yep, sorry Ted, he is way ahead of you. I am sure … Continue reading

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A Little Respect – Blood Sisters, Part 2

Aretha’s death is puncturing the airwaves just as her voice did. The RESPECT song is a hallmark of the #Metoo movement, and we need it now more than ever. It is the handle of a hammer for women. We will … Continue reading

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Don’t Be a Shunner

I am fortunate in that I have been on the other side of the Shun and I see how the join-up system works. This is the story: Continue reading

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No I Won’t Back Down: The Medicaid Syndrome

For folks with disabilities, it’s a harrowing time as the GOP holds the ol’ medical insurance globe in their hands and gives it a casual spin. Gotta get this bill passed. It is more important to prove a point — … Continue reading

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Down Syndrome, Guardianship and the Justice System

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading

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A Letter From Amanda – After 9 Months

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading

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Happy Siblings Day Amanda – Portrait Day 28 – Star Wars!

Meeting Harrison Ford is on Amanda’s bucket list. Beyond that, she is a tad obsessed with Star Wars. She can watch it ad nauseum. So, my gift to her this Sibling’s Day is a place in Hollywood History! Amanda has … Continue reading

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Amanda Portrait Day 27 – Watercolor – Modeling on the Boat

Amanda and I like to go shopping. A lot. Well, I like it better than she does. I have spent literally years dressing her, going back to the days when she was in school and had cool new clothes every … Continue reading

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Amanda Portrait Day 26 – Angel Bears

After Dad died, my friend Cindy gave Amanda and me a set of angel Beanie Baby bears. We named the bears Blaine and Elaine after our parents, and took them to Girl’s Day Out with us. I think Amanda looks … Continue reading

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Amanda Portrait Day 23 – Like a Prayer

This ethereal photo of Amanda was taken on her birthday. We had a Girl’s Day Out and she was served a free cake, complete with candle, at the restaurant. I told her to, “Make a wish!” and she immediately put … Continue reading

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