Tag Archives: abuse

No I Won’t Back Down: The Medicaid Syndrome

For folks with disabilities, it’s a harrowing time as the GOP holds the ol’ medical insurance globe in their hands and gives it a casual spin. Gotta get this bill passed. It is more important to prove a point — … Continue reading

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Down Syndrome, Guardianship and the Justice System

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading

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A Letter From Amanda – After 9 Months

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading

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Happy Siblings Day Amanda – Portrait Day 28 – Star Wars!

Meeting Harrison Ford is on Amanda’s bucket list. Beyond that, she is a tad obsessed with Star Wars. She can watch it ad nauseum. So, my gift to her this Sibling’s Day is a place in Hollywood History! Amanda has … Continue reading

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Amanda Portrait Day 27 – Watercolor – Modeling on the Boat

Amanda and I like to go shopping. A lot. Well, I like it better than she does. I have spent literally years dressing her, going back to the days when she was in school and had cool new clothes every … Continue reading

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Amanda Portrait Day 26 – Angel Bears

After Dad died, my friend Cindy gave Amanda and me a set of angel Beanie Baby bears. We named the bears Blaine and Elaine after our parents, and took them to Girl’s Day Out with us. I think Amanda looks … Continue reading

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Amanda Portrait Day 23 – Like a Prayer

This ethereal photo of Amanda was taken on her birthday. We had a Girl’s Day Out and she was served a free cake, complete with candle, at the restaurant. I told her to, “Make a wish!” and she immediately put … Continue reading

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Amanda Portrait Day 22 – Lunch with the Cast of “Friends”

On her Bucket List, Amanda included, “Lunch with the cast of ‘Friends.’” She added, “They are probably all vegetarians. Except Courteney Cox. She probably eats meat.” So today’s portrait of Amanda includes the whole ‘Friends’ cast. I’m sure Amanda is … Continue reading

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Amanda Portrait – Day 21, Watercolor and Kindergarten Story

This is how Amanda looked when my parents tried to mainstream her in the public school system. She started kindergarten with the other local kids…. Until she had an unfortunate run-in with her teacher. The following is an excerpt from … Continue reading

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Amanda Portrait, Day 20 – Watercolor – I wish I knew what she was singing!

Before she was old enough to even talk very well, Amanda was singing. ┬áMy mom snapped a Polariod of her ate age two, singing into a jump rope, with one shoe on and the other foot bare. The picture pretty … Continue reading

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