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Amanda would appreciate this image, as it is probably her favorite stage that her hair was in — long and flowing. This is the longest her hair ever got. She was about seven years old here. We always thought it … Continue reading
“Laugh it up, Fuzz Ball!” Little sis Amanda delights in that line whenever she finds it relevant. It stems, of course, from the original Star Wars, when Han Solo admonishes his jeering Wookie friend. Born with Down syndrome, Amanda’s disability … Continue reading
On March 23, two days after the celebrated World Down Syndrome Day, I gave a talk about THE NORTH SIDE OF DOWN at the Rotary of Grosse Pointe, Michigan. I explained how I had grown up with a younger sibling … Continue reading
Yeah, I get the picture. But the Universal Law of Youth and Beauty in our society is changing. However, maybe someone needs to tell the publishing world. Compelling stories of women aging way past the deadline are popping their stubborn heads up … Continue reading
I’ve never given birth. That being said, I can only imagine the anticipation that happens with the growing life forming inside of you; the preparation and the knowledge that life will never, ever be the same. Standing on the cusp of … Continue reading
Once in awhile you just nail it right smack on the ol’ noggin. These moments are rare and wonderful and they must be savored. Today, that happened for me. It’s possible that Jisun Lee is a lot more savvy than … Continue reading
I know everyone likes to see nice and sunny, funny stories about my sister Amanda, who despite (or maybe partially due to) having Down syndrome, has an offbeat, self-deprecating sense of humor and a characteristic bluntness. Her one-liners quickly became … Continue reading
It’s a little bit ironic that yesterday, of all days, I got the phone call. The whole world was reeling from the sight of three hooded terrorists, screaming about Muhammed, their spattered gunfire echoing through the streets of Paris. How much nerve does it take … Continue reading
Let’s face it: the Special Olympics has been a boon to the fitness regimen for many disabled folks who would never otherwise get out of the house. Amanda is no exception. Over the years, getting her to exercise has taken … Continue reading
Creativity seems to attract bullies. Like many other movie buffs, I have watched with interest as Seth Rogan’s new film, “The Interview” was yanked from its schedule, caving to apparent non-specific threats from an angry Korean bunch. One could only … Continue reading
wildlife rehabilitation and education
Living a Life of Purpose, Positivity, and Passion
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A blog full of stories, photos and drawings about all Wild life and nature living or surrounding Portuguesa's farmstead. / Um blog cheio de historias, fotografias e desenhos mostrando a vida selvagem e a natureza que vive e rodeia a Quinta da Portuguesa.
two of us are tall and the other one of us is short and has Down syndrome
Authors Nancy and Amanda Bailey describe in their true story what life is like growing up with Down syndrome. Hilarious, heartbreaking and inspirational.
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