Category Archives: The North Side of Down

Down Syndrome – And The Chokehold of Guardianship

In what amounts to the most heartbreaking scene I have ever witnessed, Amanda tearfully complied. This 48 year old woman with Down syndrome had to endure the public humiliation of being treated like a child. But she did it with dignity. She got up, walked out of the restaurant with Ted and his wife, and meanwhile, I restrained myself from punching anyone in the throat. Continue reading

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Amanda And The Judge

Today is important because on this day in 2013, my sister Amanda had to go before a judge and say who she wanted as guardian. Amanda has Down syndrome. At that time, she was in her early forties. Even though … Continue reading

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But She’s Got Down Syndrome, Right?

I just got off the phone with a lawyer in Arizona. We talked at length about Amanda’s case. I explained that Amanda has Down syndrome and she wants to move back to Michigan and live with me. I told him … Continue reading

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Down Syndrome, Guardianship Abuse: A Timeline

Once a guardian figures out he is an oligarch and answers to no one, including the law, there are no limits to his behavior. This is a rundown on how the situation escalated with my sister, Amanda, who has Down … Continue reading

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Amanda Portrait Day 10 – Watercolor

Amanda would appreciate this image, as it is probably her favorite stage that her hair was in — long and flowing. This is the longest her hair ever got. She was about seven years old here. We always thought it … Continue reading

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Happy New Year! And May the Horse Be With You

“Laugh it up, Fuzz Ball!” Little sis Amanda delights in that line whenever she finds it relevant. It stems, of course, from the original Star Wars, when Han Solo admonishes his jeering Wookie friend. Born with Down syndrome, Amanda’s disability … Continue reading

Posted in amanda, Clifford, down syndrome, down's, down's syndrome, film, films, horse, horses, movies, The North Side of Down, Uncategorized | Tagged , , , , , , , | 1 Comment

World Down Syndrome Day

On March 23, two days after the celebrated World Down Syndrome Day, I gave a talk about THE NORTH SIDE OF DOWN at the Rotary of Grosse Pointe, Michigan. I explained how I had grown up with a younger sibling … Continue reading

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Women Over 30, Step Aside, Please….

Yeah, I get the picture. But the Universal Law of Youth and Beauty in our society is changing.  However, maybe someone needs to tell the publishing world.  Compelling stories of women aging way past the deadline are popping their stubborn heads up … Continue reading

Posted in amanda, books, disability, down syndrome, families, publishing, The North Side of Down | Tagged , , , , , | 5 Comments

Babies With Down Syndrome

I’ve never given birth.  That being said, I can only imagine the anticipation that happens with the growing life forming inside of you; the preparation and the knowledge that life will never, ever be the same.  Standing on the cusp of … Continue reading

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A Blog About a Blog About a Book

Once in awhile you just nail it right smack on the ol’ noggin.  These moments are rare and wonderful and they must be savored. Today, that happened for me.  It’s possible that Jisun Lee is a lot more savvy than … Continue reading

Posted in amanda, disabilities, disability, down syndrome, The North Side of Down | 1 Comment