Category Archives: guardianship

Down Syndrome – And The Chokehold of Guardianship

In what amounts to the most heartbreaking scene I have ever witnessed, Amanda tearfully complied. This 48 year old woman with Down syndrome had to endure the public humiliation of being treated like a child. But she did it with dignity. She got up, walked out of the restaurant with Ted and his wife, and meanwhile, I restrained myself from punching anyone in the throat. Continue reading

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Posted in abuse, amanda, down syndrome, down's, down's syndrome, empathy, guardianship, The North Side of Down | Tagged , , , , , , , | 3 Comments

Amanda And The Judge

Today is important because on this day in 2013, my sister Amanda had to go before a judge and say who she wanted as guardian. Amanda has Down syndrome. At that time, she was in her early forties. Even though … Continue reading

Posted in abuse, amanda, down syndrome, down's, down's syndrome, families, family, guardianship, The North Side of Down | Tagged , , | 2 Comments

But She’s Got Down Syndrome, Right?

I just got off the phone with a lawyer in Arizona. We talked at length about Amanda’s case. I explained that Amanda has Down syndrome and she wants to move back to Michigan and live with me. I told him … Continue reading

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The Audacity of My Sister, Amanda

My youngest sister Amanda has Down syndrome and, if you have been following her story you already know she is enmeshed in a guardianship situation that is rife with controversy. Amanda is 48 years old and I am currently crowdfunding … Continue reading

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The Age of Entitlement – And the Abuse of Women

The head-spinning events today involving the supreme court appointment have me looking up statistics. White men in power. I think I have a case of PTSD. One in four women in America has been sexually abused. This is just the … Continue reading

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When Your Siblings Become Cartoons To Promote Human Rights

This is my illustration of an event that happened at my brother Jon’s memorial service on August 10. My sister Amanda has Down syndrome and we are both brokenhearted over his death. We loved Jon. I wanted to take her … Continue reading

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Down Syndrome, and Freedom of Speech — The Truth Isn’t The Truth

Who will be your guardian? Who will take control when you are deemed unfit to make decisions? For my sister Amanda, who has Down syndrome, this has already been decided. She is not allowed to mourn for her brother in … Continue reading

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Blood Sisters Part 3 — Is Amanda’s Guardian Mean, Crazy or Just Stupid?

Falling into the category of, “Making a Hard Loss Harder Than It Has To Be”: #griefsucks #familysucksmore #guardianshipsucks #downsyndromedoesnotequalstupid Mean Sees Amanda just lost her favorite brother, Jon. (Yep, sorry Ted, he is way ahead of you. I am sure … Continue reading

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A Little Respect – Blood Sisters, Part 2

Aretha’s death is puncturing the airwaves just as her voice did. The RESPECT song is a hallmark of the #Metoo movement, and we need it now more than ever. It is the handle of a hammer for women. We will … Continue reading

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They’re Back At It — And We’re Still Blood Sisters

If this seems like something that doesn’t concern you, as my sister Amanda would say, “Think again.” Amanda has Down syndrome. How does this relate to you? Let me explain it. At some point, God willing, you will grow old. … Continue reading

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