Category Archives: guardianship

Blood Sisters Part 3 — Is Amanda’s Guardian Mean, Crazy or Just Stupid?

Falling into the category of, “Making a Hard Loss Harder Than It Has To Be”: #griefsucks #familysucksmore #guardianshipsucks #downsyndromedoesnotequalstupid Mean Sees Amanda just lost her favorite brother, Jon. (Yep, sorry Ted, he is way ahead of you. I am sure … Continue reading

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A Little Respect – Blood Sisters, Part 2

Aretha’s death is puncturing the airwaves just as her voice did. The RESPECT song is a hallmark of the #Metoo movement, and we need it now more than ever. It is the handle of a hammer for women. We will … Continue reading

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They’re Back At It — And We’re Still Blood Sisters

If this seems like something that doesn’t concern you, as my sister Amanda would say, “Think again.” Amanda has Down syndrome. How does this relate to you? Let me explain it. At some point, God willing, you will grow old. … Continue reading

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Down Syndrome, Guardianship and the Justice System

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading

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Amanda Portrait – Day 5

It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading

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Amanda Portrait – Day 4

When Amanda was a little girl, she spent long hours sitting with me in my room, watching and keeping me company while I wrote stories at my desk. She didn’t learn to read and write until she was 21 or … Continue reading

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Amanda Portrait, Day 3

Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading

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Inauguration and Feathers of Down Syndrome

As Inauguration Day circles above us, riding the air currents like a predator, many have been dreading the last hours of our dear President Obama’s administration. His eloquence, grace and humor will certainly leave a tremendous void. But this inauguration … Continue reading

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Bad Habits

My sister Amanda has some bad habits. Amanda loves sweets. She loves food in general. She loves to sleep late. She doesn’t like to shower or brush her teeth. Amanda has Down syndrome. She has struggled with her weight throughout her … Continue reading

Posted in abuse, cognition, disabilities, disability, dispute, down syndrome, down's, down's syndrome, empathy, families, family, guardianship, Michigan | Tagged , , | 3 Comments

The North Side of Down

    “There are two powers in the world; one is the sword and the other is the pen. There is a great competition and rivalry between the two. There is a third power stronger than both, that of the … Continue reading

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