Category Archives: guardianship

The Age of Entitlement – And the Abuse of Women

The head-spinning events today involving the supreme court appointment have me looking up statistics. White men in power. I think I have a case of PTSD. One in four women in America has been sexually abused. This is just the … Continue reading

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When Your Siblings Become Cartoons To Promote Human Rights

This is my illustration of an event that happened at my brother Jon’s memorial service on August 10. My sister Amanda has Down syndrome and we are both brokenhearted over his death. We loved Jon. I wanted to take her … Continue reading

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Down Syndrome, and Freedom of Speech — The Truth Isn’t The Truth

Who will be your guardian? Who will take control when you are deemed unfit to make decisions? For my sister Amanda, who has Down syndrome, this has already been decided. She is not allowed to mourn for her brother in … Continue reading

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Blood Sisters Part 3 — Is Amanda’s Guardian Mean, Crazy or Just Stupid?

Falling into the category of, “Making a Hard Loss Harder Than It Has To Be”: #griefsucks #familysucksmore #guardianshipsucks #downsyndromedoesnotequalstupid Mean Sees Amanda just lost her favorite brother, Jon. (Yep, sorry Ted, he is way ahead of you. I am sure … Continue reading

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A Little Respect – Blood Sisters, Part 2

Aretha’s death is puncturing the airwaves just as her voice did. The RESPECT song is a hallmark of the #Metoo movement, and we need it now more than ever. It is the handle of a hammer for women. We will … Continue reading

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They’re Back At It — And We’re Still Blood Sisters

If this seems like something that doesn’t concern you, as my sister Amanda would say, “Think again.” Amanda has Down syndrome. How does this relate to you? Let me explain it. At some point, God willing, you will grow old. … Continue reading

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Down Syndrome, Guardianship and the Justice System

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading

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Amanda Portrait – Day 5

It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading

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Amanda Portrait – Day 4

When Amanda was a little girl, she spent long hours sitting with me in my room, watching and keeping me company while I wrote stories at my desk. She didn’t learn to read and write until she was 21 or … Continue reading

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Amanda Portrait, Day 3

Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading

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