Category Archives: down’s syndrome

Down Syndrome – And The Chokehold of Guardianship

In what amounts to the most heartbreaking scene I have ever witnessed, Amanda tearfully complied. This 48 year old woman with Down syndrome had to endure the public humiliation of being treated like a child. But she did it with dignity. She got up, walked out of the restaurant with Ted and his wife, and meanwhile, I restrained myself from punching anyone in the throat. Continue reading

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Posted in abuse, amanda, down syndrome, down's, down's syndrome, empathy, guardianship, The North Side of Down | Tagged , , , , , , , | 3 Comments

Amanda And The Judge

Today is important because on this day in 2013, my sister Amanda had to go before a judge and say who she wanted as guardian. Amanda has Down syndrome. At that time, she was in her early forties. Even though … Continue reading

Posted in abuse, amanda, down syndrome, down's, down's syndrome, families, family, guardianship, The North Side of Down | Tagged , , | 2 Comments

But She’s Got Down Syndrome, Right?

I just got off the phone with a lawyer in Arizona. We talked at length about Amanda’s case. I explained that Amanda has Down syndrome and she wants to move back to Michigan and live with me. I told him … Continue reading

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The Audacity of My Sister, Amanda

My youngest sister Amanda has Down syndrome and, if you have been following her story you already know she is enmeshed in a guardianship situation that is rife with controversy. Amanda is 48 years old and I am currently crowdfunding … Continue reading

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Toxic Siblings, and the Bailey Legacy

Lately, I have seriously considered permanently changing my name. Because I am an artist and writer, I have always just kept my own name to avoid confusion, even maintaining it through an eleven-year marriage, now defunct. There is the matter … Continue reading

Posted in abuse, amanda, Dad, down syndrome, down's, down's syndrome, Drummond, drummond island, dysfunctional, empathy, families, family | Tagged , , , | 3 Comments

When Your Guardian Acts Like a Creepy Stalker Dude

Amanda: Hellooooooo Me: Holy moly where have you been?! Do you know how long it has been since I talked with you? Amanda: I know! Me: I mean like I was wondering if they threw you in a ditch or … Continue reading

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Amanda Portrait, Day 3

Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading

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Precedent, Not President

The election of Donald Trump has shaken a large (perhaps the majority – since more people actually voted for Hillary Clinton) part of the population. One faction affects me personally — Hillary had promised to be a champion for people … Continue reading

Posted in abuse, amanda, disabilities, disability, down syndrome, down's, down's syndrome, dysfunctional, empathy, families, family | Tagged , , , , | Leave a comment

Bullying

This blog post is worth a revisit: From January 21, 2015 Prior Lake Priorities – On Bullying I know everyone likes to see nice and sunny, funny stories about my sister Amanda, who despite (or maybe partially due to) having … Continue reading

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Bad Habits

My sister Amanda has some bad habits. Amanda loves sweets. She loves food in general. She loves to sleep late. She doesn’t like to shower or brush her teeth. Amanda has Down syndrome. She has struggled with her weight throughout her … Continue reading

Posted in abuse, cognition, disabilities, disability, dispute, down syndrome, down's, down's syndrome, empathy, families, family, guardianship, Michigan | Tagged , , | 3 Comments