Category Archives: down syndrome

A Letter From Amanda – After 9 Months

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading

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Amanda Portrait Day 26 – Angel Bears

After Dad died, my friend Cindy gave Amanda and me a set of angel Beanie Baby bears. We named the bears Blaine and Elaine after our parents, and took them to Girl’s Day Out with us. I think Amanda looks … Continue reading

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Amanda Portrait Day 25 – Don’t You Forget About Me

This is Day 25 of posting Amanda’s portrait. I keep posting these images of her because I am so afraid she will be forgotten like others who cannot speak for themselves. I don’t want her to disappear. Today I received … Continue reading

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Amanda Portrait, Day 24 – Like a Prayer, 2

Mixed media. Amanda has Down syndrome and is currently being held by her guardian, a sibling who is not allowing us to have contact. On March 27 it has been 8 months since I have spoken with my sister. I … Continue reading

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Amanda Portrait Day 22 – Lunch with the Cast of “Friends”

On her Bucket List, Amanda included, “Lunch with the cast of ‘Friends.’” She added, “They are probably all vegetarians. Except Courteney Cox. She probably eats meat.” So today’s portrait of Amanda includes the whole ‘Friends’ cast. I’m sure Amanda is … Continue reading

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Amanda Portrait – Day 9 – Happy Down Syndrome Day!

In honor of Down Syndrome Day, this shows Amanda as she truly is: A goof ball! Like her dad before her, she has a self-effacing sense of humor. She is a person very confident in who she is. I wanted … Continue reading

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Amanda Portrait – Day 5

It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading

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Amanda Portrait, Day 3

Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading

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Nevertheless, She Persisted

  I received a Valentine’s Day card today from my sister Amanda. Amanda has Down syndrome. She is 46 years old and, following the death of our Dad in 2013, she went to live with our older brother in Arizona. … Continue reading

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Inauguration and Feathers of Down Syndrome

As Inauguration Day circles above us, riding the air currents like a predator, many have been dreading the last hours of our dear President Obama’s administration. His eloquence, grace and humor will certainly leave a tremendous void. But this inauguration … Continue reading

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