Category Archives: disability

No I Won’t Back Down: The Medicaid Syndrome

For folks with disabilities, it’s a harrowing time as the GOP holds the ol’ medical insurance globe in their hands and gives it a casual spin. Gotta get this bill passed. It is more important to prove a point — … Continue reading

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When Your Guardian Acts Like a Creepy Stalker Dude

Amanda: Hellooooooo Me: Holy moly where have you been?! Do you know how long it has been since I talked with you? Amanda: I know! Me: I mean like I was wondering if they threw you in a ditch or … Continue reading

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Amanda Portrait, Day 3

Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading

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Nevertheless, She Persisted

  I received a Valentine’s Day card today from my sister Amanda. Amanda has Down syndrome. She is 46 years old and, following the death of our Dad in 2013, she went to live with our older brother in Arizona. … Continue reading

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Precedent, Not President

The election of Donald Trump has shaken a large (perhaps the majority – since more people actually voted for Hillary Clinton) part of the population. One faction affects me personally — Hillary had promised to be a champion for people … Continue reading

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Free State of (Disability) Jones

  It’s Independence Day, so I guess it is the ideal time to point out that all Americans are not free. The film Free State of Jones is a triumphant and tragic commentary on how far independence has come. Matthew … Continue reading

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Bad Habits

My sister Amanda has some bad habits. Amanda loves sweets. She loves food in general. She loves to sleep late. She doesn’t like to shower or brush her teeth. Amanda has Down syndrome. She has struggled with her weight throughout her … Continue reading

Posted in abuse, cognition, disabilities, disability, dispute, down syndrome, down's, down's syndrome, empathy, families, family, guardianship, Michigan | Tagged , , | 3 Comments

Women Over 30, Step Aside, Please….

Yeah, I get the picture. But the Universal Law of Youth and Beauty in our society is changing.  However, maybe someone needs to tell the publishing world.  Compelling stories of women aging way past the deadline are popping their stubborn heads up … Continue reading

Posted in amanda, books, disability, down syndrome, families, publishing, The North Side of Down | Tagged , , , , , | 5 Comments

A Blog About a Blog About a Book

Once in awhile you just nail it right smack on the ol’ noggin.  These moments are rare and wonderful and they must be savored. Today, that happened for me.  It’s possible that Jisun Lee is a lot more savvy than … Continue reading

Posted in amanda, disabilities, disability, down syndrome, The North Side of Down | 1 Comment

The Interview, The Thugs and The North Side of Down

Creativity seems to attract bullies.  Like many other movie buffs, I have watched with interest as Seth Rogan’s new film, “The Interview” was yanked from its schedule, caving to apparent non-specific threats from an angry Korean bunch.  One could only … Continue reading

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