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Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading
Amanda: Hellooooooo Me: Holy moly where have you been?! Do you know how long it has been since I talked with you? Amanda: I know! Me: I mean like I was wondering if they threw you in a ditch or … Continue reading
Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading
I call this, “The Two Golden Orbs.” The picture is from the weeks in 2013 following Dad’s death, when Amanda and I stayed in the motel room that Amanda called, “Our apartment.” Este slept on Amanda’s bed every night and … Continue reading
Today’s portrait is kind of cheating because I drew this back in 1978 or 79. It is a pencil sketch of Amanda, done from life, when she was brushing her hair. She is pictured with our sister. This drawing came … Continue reading
It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading
So a couple of days ago I enlisted the help of a professional negotiator. Today, she finally reached the guardian’s lawyer. The negotiator called me back and explained that the guardian WANTS me to “have a relationship with Amanda”, but … Continue reading
When Amanda was a little girl, she spent long hours sitting with me in my room, watching and keeping me company while I wrote stories at my desk. She didn’t learn to read and write until she was 21 or … Continue reading
Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading
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A blog full of stories, photos and drawings about all Wild life and nature living or surrounding Portuguesa's farmstead. / Um blog cheio de historias, fotografias e desenhos mostrando a vida selvagem e a natureza que vive e rodeia a Quinta da Portuguesa.
two of us are tall and the other one of us is short and has Down syndrome
Authors Nancy and Amanda Bailey describe in their true story what life is like growing up with Down syndrome. Hilarious, heartbreaking and inspirational.
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