Category Archives: abuse

Blood Sisters Part 3 — Is Amanda’s Guardian Mean, Crazy or Just Stupid?

Falling into the category of, “Making a Hard Loss Harder Than It Has To Be”: #griefsucks #familysucksmore #guardianshipsucks #downsyndromedoesnotequalstupid Mean Sees Amanda just lost her favorite brother, Jon. (Yep, sorry Ted, he is way ahead of you. I am sure … Continue reading

Posted in abuse, amanda, down syndrome, empathy, family, guardianship | Tagged , , , | Leave a comment

A Little Respect – Blood Sisters, Part 2

Aretha’s death is puncturing the airwaves just as her voice did. The RESPECT song is a hallmark of the #Metoo movement, and we need it now more than ever. It is the handle of a hammer for women. We will … Continue reading

Posted in abuse, amanda, down syndrome, empathy, guardianship | Tagged , , , | Leave a comment

They’re Back At It — And We’re Still Blood Sisters

If this seems like something that doesn’t concern you, as my sister Amanda would say, “Think again.” Amanda has Down syndrome. How does this relate to you? Let me explain it. At some point, God willing, you will grow old. … Continue reading

Posted in abuse, amanda, disability, down syndrome, empathy, guardianship | Tagged , , , , | 3 Comments

Don’t Be a Shunner

I am fortunate in that I have been on the other side of the Shun and I see how the join-up system works. This is the story: Continue reading

Posted in abuse, empathy, families, family, relationships | Tagged , , , | 1 Comment

Down Syndrome, Guardianship and the Justice System

Down syndrome, formerly called “Mongolian Idiocy” was named for a physician who described the condition in the 1860’s, Dr. John Langdon Down. He wrote: The Mongolian type of idiocy occurs in more than ten per cent of the cases which … Continue reading

Posted in abuse, amanda, down syndrome, empathy, guardianship | Tagged , , , | Leave a comment

When Your Guardian Acts Like a Creepy Stalker Dude

Amanda: Hellooooooo Me: Holy moly where have you been?! Do you know how long it has been since I talked with you? Amanda: I know! Me: I mean like I was wondering if they threw you in a ditch or … Continue reading

Posted in abuse, amanda, disability, dispute, down syndrome, down's syndrome, empathy | Tagged , , , | Leave a comment

A Letter From Amanda – After 9 Months

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading

Posted in abuse, amanda, down syndrome, empathy | Tagged , , , , | Leave a comment

Amanda Portrait – Day 8

I call this, “The Two Golden Orbs.” The picture is from the weeks in 2013 following Dad’s death, when Amanda and I stayed in the motel room that Amanda called, “Our apartment.” Este slept on Amanda’s bed every night and … Continue reading

Posted in abuse, amanda, empathy | Tagged , , , , , , , , , | 2 Comments

Amanda Portrait – Day 7

Today’s portrait is kind of cheating because I drew this back in 1978 or 79. It is a pencil sketch of Amanda, done from life, when she was brushing her hair. She is pictured with our sister. This drawing came … Continue reading

Posted in abuse, empathy | Tagged , , , , , , | Leave a comment

Amanda Portrait – Day 5

It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading

Posted in abuse, amanda, down syndrome, empathy, guardianship | Tagged , , , , , , , | 1 Comment