Category Archives: abuse

A Letter From Amanda – After 9 Months

Finally, a real letter from Amanda arrived yesterday. It was a genuine one from her, the first in a year’s time. It was mostly about Mom and Dad and how much she misses them. I understand. I feel connected to … Continue reading

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Amanda Portrait – Day 8

I call this, “The Two Golden Orbs.” The picture is from the weeks in 2013 following Dad’s death, when Amanda and I stayed in the motel room that Amanda called, “Our apartment.” Este slept on Amanda’s bed every night and … Continue reading

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Amanda Portrait – Day 7

Today’s portrait is kind of cheating because I drew this back in 1978 or 79. It is a pencil sketch of Amanda, done from life, when she was brushing her hair. She is pictured with our sister. This drawing came … Continue reading

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Amanda Portrait – Day 5

It is tempting to paint Amanda as a child, because she was so pretty and photogenic. But it is important to remember that she is not a child. Today, she is shown as a woman. This is how she was … Continue reading

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Amanda, Mom is Watching!

So a couple of days ago I enlisted the help of a professional negotiator. Today, she finally reached the guardian’s lawyer. The negotiator called me back and explained that the guardian WANTS me to “have a relationship with Amanda”, but … Continue reading

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Amanda Portrait – Day 4

When Amanda was a little girl, she spent long hours sitting with me in my room, watching and keeping me company while I wrote stories at my desk. She didn’t learn to read and write until she was 21 or … Continue reading

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Amanda Portrait, Day 3

Amanda is a Special Olympics gold medal swimmer and diver. If the ferry boat ever sinks, she is, “under contract to save my sorry cement block butt.” She started out young — Dad wanted her to be confident in the … Continue reading

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Guardian Abuse and How to Stop It

Guardian abuse is becoming an epidemic. Well, perhaps “becoming” is the wrong word. It likely has been happening to families for many years. I had a conversation with Catharine Falk the other day. She is the daughter of Peter Falk … Continue reading

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Nevertheless, She Persisted

  I received a Valentine’s Day card today from my sister Amanda. Amanda has Down syndrome. She is 46 years old and, following the death of our Dad in 2013, she went to live with our older brother in Arizona. … Continue reading

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Inauguration and Feathers of Down Syndrome

As Inauguration Day circles above us, riding the air currents like a predator, many have been dreading the last hours of our dear President Obama’s administration. His eloquence, grace and humor will certainly leave a tremendous void. But this inauguration … Continue reading

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